CCI4EU (Comprehensive Cancer Infrastructures for the European Union) is a European project aiming to help Member States and Associated Countries improve or develop their existing or future Comprehensive Cancer Infrastructures (CCIs), by helping develop their research & innovation-related capacities.
This course is one of 10 online training courses organised within the project to help countries develop an effective comprehensive infrastructure and widen the reach of this grant. The topic of this online course is Patient empowerment and patient-centered care.
The aim of the course is empowering patients and helping faculty to focus on patient-centred care.
Target audience Directors, managers and coordinators at hospitals/clinics/CCIs, clinicians, researchers, nurses, patients advocates
Course delivery
This online course will be held live on 19th March from 13:00 - 17:30 (CET) via this webpage. The entire course will be recorded and will remain available as on-demand material. To access the course, participants must register and login to the e-ESO platform on the date of the event.
Official language
The course will be held in English. Translations will not be provided. During the live streaming, Zoom subtitles will be available in all languages.
Registration
Registration to the course is free but mandatory. Registration will be confirmed by e-mail.
Certificate of attendance
Participants (both live and on-demand) will be issued a certificate of attendance once they have completed a minimum attendance of 75% of the entire course. An online evaluation questionnaire must be completed in order to receive the certificate that will be issued by email. The evaluation questionnaire will appear in the right-hand column of the course page when participants have completed the course.
Patient, build your own action plan to beat the cancer (Part 1)
19/03/2025
Empowering Through Knowledge: What Patients Need to Know
Expert:
Cyril Sarrauste De Menthière, FR
The Role of Support Groups in Empowerment
Chair:
Delia Nicoara, RO
Digital Solutions for Patient Engagement
Expert:
Wannes Van Hoof, BE
Patient, build your own action plan to beat the cancer (Part 2)
19/03/2025
Models of Patient Involvement in Latin America
Expert:
Paulina Bravo, CL
Testimonial: A Patient's Journey Through Cancer and Empowerment
Chair:
Alexandre Brutti, FR
Discussion
Help yourself by being prepared
19/03/2025
Mind Over Matter: The Role of Psychology in Patient Resilience
Expert:
Nicoleta-Monica Pasca, RO
Nutrition for Health and Healing
Expert:
Roxana-Raluca Bârzu, RO
Personalized Medicine: Tailoring Treatment to Each Patient
Expert:
Alexandru Petrusan, RO
Discussion
BREAK
19/03/2025
Practical Tools and Inspirational Insights (Part 1)
19/03/2025
Right to be forgotten - Patients' Rights and Advocacy
Expert:
Adela Maghear, BE
Self-Management Skills for Survivorship
Expert:
Inna Shchepanska, DE
My Journey to Healing: Lessons from the Patient's Perspective
Expert:
Andreea Breaz, RO
Practical Tools and Inspirational Insights (Part 2)
19/03/2025
Closing the Gap: Experience in Empowering patient from Ireland
Expert:
Caitriona Higgins, IE
Inspirational Testimonial: Lessons in Resilience
Expert:
Alexandra Villatte, FR
Discussion
Closing Remarks and Key Takeaways
19/03/2025
Chairs:
Alexandre Brutti, FR - Delia Nicoara, RO
Roxana-Raluca Bârzu
Clinical Nutritionist and Registered Dietitian,
MedEuropa Clinic; Oncology and Radiotherapy SN Clinic of Craiova; Bucharest Oncology Institute,
Bucharest,
Romania
Paulina Bravo
Fundación Arturo López Pérez,
Director of Patient Education and Involvement,
Santiago,
Chile
Andreea Breaz
Educator,
Gabrielle Association - Out of care for women,
Cluj-Napoca,
Romania
Alexandre Brutti
Engineer, Stage IV Lung Cancer Survivor, Patient Advocate,
OECI; Lung Cancer Europe,
Paris,
France
Caitriona Higgins
CNM3 and Patient Partnership Lead,
Cancer Directorate, Beaumont RCSI Cancer Centre,
Dublin,
Ireland
Adela Maghear
Senior Health Policy Advisor,
Independent,
Brussel,
Belgium
Delia Nicoara
Public Health Specialist,
The Oncology Institute "Prof. Dr. Ion Chiricuta",
Cluj-Napoca,
Romania
Nicoleta-Monica Pasca
Clinical Psychologist,
Institute of Oncology "Prof. Dr. Ion Chiricuta",
Cluj-Napoca,
Romania
Alexandru Petrusan
General Surgeon,
The Oncology Institute Cluj-Napoca,
Cluj-Napoca,
Romania
Cyril Sarrauste De Menthière
Patient Partner,
Mon Réseau Cancer Colorectal & Montpellier SIRIC,
Montpellier,
France
Inna Shchepanska
Breast Cancer Patient Advocate,
Spark & Heal,
Berlin,
Germany
Wannes Van Hoof
ELSI Unit lead,
Sciensano,
Brussels,
Belgium
Alexandra Villatte
Patient Partner,
Hôpital Européen Georges Pompidou,
Paris,
France
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